I was first introduced to Look Sussex whilst at an eye appointment at Brighton hospital for my daughter Megan who is 6.
Megan was born with a very rare genetic condition called WAGR Syndrome, which affects one in a million people in the world. We found out this diagnosis when Megan was 8 weeks old.
She developed glaucoma quite early on and we were referred up to Moorfields Eye Hospital in London, where we are still seen now. She has had many eye operations so far and I’m sure there will be many more to come!
We attended our first Look Sussex event when Megan was a baby. It was a coffee morning and it was lovely! We also attended the Christmas party quite early on too. Since then we have been to many events and enjoyed every single one of them!
We have also been to many events held by Blatchington Court Trust too. This year, as a family, we attended one of VICTA’s family weekends for the first time, which was amazing!
One of the other trustees from Look Sussex recommended it and it was definitely worth it. I would highly recommend it to anyone.
I decided to become a trustee for Look Sussex so that I could give something back to this amazing charity and help and support them with future events and ideas.
I thoroughly enjoy being a trustee and being a part of this wonderful charity. It’s like a family to me and so supportive.